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It has been a looooong day.
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eastbaysanfranman
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eastbaysanfranman
Joined: 29 Oct 2007
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Posted Wed Mar 12, 2014, 1:36am
Subject: Re: It has been a looooong day.
 

I'm glad that coffee geek has a general off topic forum to talk about whatever we want to instead of just arguing about coffee all of the time. The internet sure has brought a sense of community into our homes which never previously existed. A community I sure am thankful to be part of. I'm glad that you have a place to post about the crisis in your life Wayne and I sure hope things get better for you guys.
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NobbyR
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NobbyR
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Posted Wed Mar 12, 2014, 4:58am
Subject: Re: It has been a looooong day.
 

My best wishes to you and your wife, Wayne. I hope everything will go fine.

 
***
"This drink of the Satan is so delicious that it would be a shame to leave it to the infidels." (Pope Clement VIII on coffee, when he was urged to ban the beverage)
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Clingstone
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Clingstone
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Posted Wed Mar 12, 2014, 8:07am
Subject: Re: It has been a looooong day.
 

My thoughts and prayers as well.

 
"AND THE BOSTON RED SOX HAVE WON THE WORLD SERIES! CAN YOU BELIEVE IT!!??"
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uscfroadie
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uscfroadie
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Posted Wed Mar 12, 2014, 8:31am
Subject: Re: It has been a looooong day.
 

Best wishes to you and your wife, Wayne.  My thoughts are with you.
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emradguy
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emradguy
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Posted Wed Mar 12, 2014, 11:45am
Subject: Re: It has been a looooong day.
 

Wayne,

I just saw this thread. Wow, what can one say? Though we've not met in person, I consider you a friend, and am truly sorry to her of the downturn your wife's condition has taken. I hope all works out for the best and that she can gain some momentum on recovering soon. Being so far away, it's hard to offer any concrete help, but I hope you know you can count on me for moral support!

Sincerely,

Ron

 
.
Always remember the most important thing is what ends up in your cup!
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calblacksmith
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calblacksmith
Joined: 25 Nov 2007
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Location: Riverside, Ca, U.S.A.
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Posted Wed Mar 12, 2014, 8:57pm
Subject: Re: It has been a looooong day.
 

Thank you all, so much.

Lets see, when last we joined our hero, .... LOL!

Lots has happened. The surgery was postponed Tue, the doc wanted to know more, he got a conference together with about 6 other ... brain docs, to kick around what they may find and what to do about it. They basically came up with the same thing that the last set of docs came up with about 30 years ago when this all started, they decided that it did not fit into any box, no disease that is on the books, .... my wife is... unique but I could have told them that from the start! :D

The operated this morning and the surgery took about two hours. They started by drilling a hole (yet another hole) in her head as she did not have anything already predrilled where they wanted to have access. This cyst is a new one from any of the others she has from before, it was about 6 cm in dia and if I have my conversion factor right (or if I used the correct metric unit to start with) it was about 2.5 inches across (growing in the center of the brain) When they got inside, they found some necrotic tissue (dead tissue of some sort) that was attached to the wall of the cyst and they were sure that the tissue was the reason for this cyst. To get access to the tissue, they needed a bigger access point so they made the hole in her head even bigger. They removed the tissue but due to the size of the cyst, if they removed it or made it too small too fast, they were afraid of causing the blood vessels that in part tie the brain to the inside of the skull to rupture and bleed. So they decided to place a tube into the cyst and now she has it sticking out the left front top of the head. It is routed up and around so that gravity will not drain the fluid which is maintaining the shape of the cyst inside the brain matter thus preventing the tearing and bleeding. The tube is open though (measures to maintain sterility are in place) so pressure can vent.

We saw her about an hour after the end of surgery and she was just getting settled into the intensive care unit.  She was still kind of out of things due to the surgery but we could see an improvement in her talking and movement. So things are looking up, I will be going back early in the morning to see her and spend most of the day there. Today we (my son and I ) only stayed about an hour with her after she left the OR. I felt that even though, it was comforting to her to have us there, she would get more rest if we left. Tomorrow, after things have settled we will know more.

It will take time to know the result of todays surgery but we do know that without it, .... well the outcome was not good.

Thanks again for everyone here, the support is more valuable than sometimes we know when a post of support is made, I know often I will add a comment to a thread like this, feeling like I wish I could do more but knowing that prayer is all I can do. It all helps guys, it all helps. :D

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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MarkPrince
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Joined: 19 Dec 2001
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Posted Thu Mar 13, 2014, 5:40am
Subject: Re: It has been a looooong day.
 

You wife and you are in our thoughts, prayers and hopes, Wayne.

Edit. I made this post a sticky for a few days so the rest of our community can be informed and send good vibes your way.

Mark

 
CoffeeGeek Senior Editor
www.twitter.com/coffeegeek www.flickr.com/coffeegeek, www.instagram.com/coffeegeek (you get the picture)
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calblacksmith
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calblacksmith
Joined: 25 Nov 2007
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Location: Riverside, Ca, U.S.A.
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Roaster: gave it a try, decided no
Posted Thu Mar 13, 2014, 7:04am
Subject: Re: It has been a looooong day.
 

Mark, thank you, you guys are truly a family.

This is a pic of her head scan, anything white is not supposed to be there. I have been dealing with this for 30 years so I am a bit jaded but still, ..... wow.

calblacksmith: head.jpg
(Click for larger image)

 
In real life, my name is
Wayne P.
Anything I post is personal opinion and is only worth as much as anyone else's personal opinion. YMMV!

Feed the newbs, starve the trolls and above all enjoy what you drink!
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NobbyR
Senior Member
NobbyR
Joined: 10 Jul 2011
Posts: 2,039
Location: Germany
Expertise: I love coffee

Espresso: Poccino Opus One, Ariete
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Posted Thu Mar 13, 2014, 7:11am
Subject: Re: It has been a looooong day.
 

The picture is impressive even for a physician like me. However, the latest news sound with all due caution optimistic. Keep us updated, if you will. Again, my best wishes to you and your family, Wayne.

 
***
"This drink of the Satan is so delicious that it would be a shame to leave it to the infidels." (Pope Clement VIII on coffee, when he was urged to ban the beverage)
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dana_leighton
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dana_leighton
Joined: 11 Jan 2002
Posts: 1,938
Location: Little Rock, AR
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Posted Thu Mar 13, 2014, 7:16am
Subject: Re: It has been a looooong day.
 

calblacksmith Said:

This is a pic of her head scan, anything white is not supposed to be there. I have been dealing with this for 30 years so I am a bit jaded but still, ..... wow.

Posted March 13, 2014 link

Wow is right. Wayne, your resilience and attitude are inspiring. I'm sorry you've had to demonstrate that resilience, but I hope things go smooth from here on out. And remember to find a good cup of coffee when you can along the way. :) Best wishes - Dana.

 
Dana Leighton - Espresso hack and CoffeeGeek moderator
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